Positive progress at last. Tim and I met the surgeon again a week ago, and confirmed that we were still fit and healthy. Then yesterday the transplant nurse confirmed that a date has been set (again - see last time) for the operations, namely October 16th. This is the date we agreed tentatively at our meeting, but this time (unlike last time - see here) they waited until the team meeting every Friday had confirmed the decision before telling us it was set. We did have options to ask for a September date but this is out due to family events like a wedding.
Since Tim's eGFR is still just above 15%, what has changed? I think basically they have accepted Tim's evidence of being less physically fit this year than the same time last year, and therefore on the basis of his reduced quality of life, they have accepted that the operation should go ahead. I suppose that eGFR is not the only symptom but is used as a convenient measure which covers most cases, but not this one!
Now, I still need to have the HTA interview, and this will be booked for September. I also need to have another ultrasound - I think they like to have this one really up to date and my previous one was in August last year, so will be 14 months old. Hopefully this will be fixed for the same date to save me too much travelling. Then we're ready to roll!
